VP – General Counsel & Privacy Officer
Indiana Health Information Exchange
Topic: Big Daddy: Use of Disclosure of Personal Information by Big Data Companies
Valita Fredland, JD, MA, CIPP, CIPM, Privacy and Security Council and Ethicist: Stewarding ethical and legal privacy and security of information. Attorney experienced with Data Privacy & Security, Telemedicine, Electronic Medical Records, General Health Care Law and EU General Data Protection Regulation (GDPR). Legal Officer | Bioethicist | IAPP Fellow of Information Privacy | Certified Information Privacy Professional | Certified Information Privacy Manager | Bio Informatics and Law School Faculty
(I’m giving this talk along with Erin Albert.)
One paragraph description:
As we compile more data, big companies have an ethical obligation to utilize the data in meaningful ways, but also ethical and respectful ways for people’s privacy to be ensured. In this session, we will: Describe the Personal Privacy Issues Raised by Big Data – Using Pharmaceutical Industry as an Example (include explanation of generational attitudes and differences around privacy). Discuss how big data companies are currently deciding to use and disclose personal information (Facebook, Uber, etc.) Share best practices from health and ethics (such as IRBs) and how the health model might fit into digital companies for handling ethical issues.